Wow, I almost don’t know where to start. If you listen to the Podcast you know what is going on. For those that don’t listen, my life has changed and I honestly never would have imagined this is where I would be two months ago.
My Dad was diagnosed with a brain tumor following a MRI for memory issues in June. He was referred to an amazing neurosurgeon that did a CT scan. Because of the location of the tumor, it was important that it was removed right away. And, we wouldn’t know if the tumor was cancer or benign until it was removed. The surgery was scheduled for the end of July.
Surgery day was stressful, but Dad came through it like a champ. The tumor was cancer, however the surgeon was able to remove all of it. And because of the type of tumor, it doesn’t require chemo or radiation. So, in the world of cancer, this was probably the best possible outcome that we could ask for.
The odd thing now is that was the easy part. I never would have imagined in a million years that the surgery and cancer diagnosis would be the easiest part of the recovery. Because of the location of the tumor and the swelling of the brain in the area that it was removed, Dad lost his short term memory. At first, it might not seem like a big deal, but as the days went on we started to realize how big of a life changer this was. Imagine it. You no longer know where you are. Are you at home? Are you in a different city? Are you in a different hospital? You don’t know when you are. What is the year? What is the month? What day of the week is it? You don’t remember that you had surgery. You don’t remember what you did 10 minutes ago. It’s like the movie 50 first dates, but instead of starting over every morning…. Dad’s memory resets about every 5 minutes. I naively thought I would see some improvement in his memory each morning when I would visit him in the ICU/hospital. The neuro doctors and nurses would ask him the same questions each time they visited. Do you know what year this is? Do you know where you are? Do you know why you are here? Do you know what month it is? The year was almost always 2020. He would change where he was almost daily…GR, Grand Haven, Holland, Muskegon. He would rarely know why he was in the hospital. And the month was always January, even though it was July/August. There was still no improvement when he moved from the hospital to the rehab facility.
The rehab facility was amazing. They worked with Dad to try to use his resources to figure out things he couldn’t remember. He could look around the room for queues on the date, location, etc. This was the first time he started to remember a little. While it was just remembering to look around for info, it was something. During rehab the biggest area of growth was in mobility. He couldn’t walk without assistance, but in the hospital he had trouble walking at all. So a nice improvement there. But, by the time he was discharged his memory hadn’t improved a lot.
On top of this, we moved my parents into an apartment that was closer to me. It was for a lot of reasons, but the primary one was so they would have a safe roomy place that they didn’t have worry about keeping up with repairs and normal home maintenance. Moving is stressful enough, but imagine doing it with someone that doesn’t have a short term memory and doesn’t remember that they moved.
It’s been a month since surgery and Dad still doesn’t know a lot of what happened in the past few months. In the evenings he always says he is ready to go home, even though they are in their new apartment…over and over and over. He talks about needing to go shopping a lot, even though he can’t drive. He doesn’t remember what he did that morning or what he had or lunch. There are small glimmers of hope because he may remember that he had physical therapy and had to walk down the hallway. But, those small memories are few and far between.
The doctor is optimistic that Dad’s memory will return in 3-6 months. Until then, he requires 24/7 supervision. Becca and I have set up a schedule to help Mom out and give her time to herself. So, our lives are going to be highly scheduled for a while. I’m grateful I am able to help and that they live 6 miles from me. While it is very stressful at times, at least the cancer is gone. And hopefully in 6 months, this whole situation will be just a bad season for our family or maybe our biggest triumph.